Write about your advice for someone caring for a patient with your condition
Talk slowly. Wait for answers. It takes us longer to think than it used to. Don't try and discuss serious things on a bad day or when there's limited time.
Look for joy and appreciate it whenever it appears.
Care for yourself too. Remember the airline instruction about putting your own oxygen mask on before assisting others.
Be gentle. I can't stress this enough. Not just with us, but with yourself, and with the world.