"You know this is the way it is. You were born, and so are subject to change, disease, and ultimately death. It happens differently for each person. This is one of the ways it's happening to you." - Toni Bernhard
"Our life is always all right. There's nothing wrong with it. Even if we have horrendous problems, it's just our life." - Charlotte Joko Beck
I'm going to do something different today, and actually use one of today's prompts!
Day 5 – Monday, Nov. 5 Health Activist Soapbox. OR Write a #ListOf3 Things that you’re thankful for / excited about / or inspired by
Dear doctors, nurses, care-givers, benefits decision makers, friends, and family members of people with invisible illnesses: I have one request to make.
Assume we are telling the truth when we describe our symptoms and capabilities. Assume that we understand our bodies better than anyone else does. Assume that we really do want help and are not just malingering. Assume that we want to know what can be done and what can't be done for us, and that we want to be full participants in our health care decisions.
Yes, there are people who fake illnesses, and people who truly do not want to get well. Assume that we are not among that minority. Start from a position of trust and belief and don't jump into suspicion and accusations unless you've actually seen evidence.